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NW4 1WS:

Email: Committee@fd-uk.org

UK registered charity number 285399

All information contained on the familialdysautonomia.co.uk website is intended for informational and educational purposes. The information is not intended nor suited to be a replacement or substitute for professional medical treatment or for professional medical advice relative to a specific medical question or condition.


We urge you to always seek the advice of your physician or medical professional with respect to your medical condition or questions. As a recipient of information from this website, you are not establishing a doctor/patient relationship with any physician. There is no replacement for personal medical treatment and advice from your personal physician.

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'Simeon's 50th Celebration'


Celebrate with us by helping raise money though your own celebration.


Simeon help raise an incredible & most valuable  £1,612 !


So if you are having an Event, Birthday, Wedding, Barmitzvah, School Fair, Business Lunch and would like to discuss with us a number of specific projects & details about much needed funding and the amazing work that we do, then please: