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FD UK

P.O. BOX 17679

London,

NW4 1WS:

Email: Committee@fd-uk.org

UK registered charity number 285399

All information contained on the familialdysautonomia.co.uk website is intended for informational and educational purposes. The information is not intended nor suited to be a replacement or substitute for professional medical treatment or for professional medical advice relative to a specific medical question or condition.

 

We urge you to always seek the advice of your physician or medical professional with respect to your medical condition or questions. As a recipient of information from this website, you are not establishing a doctor/patient relationship with any physician. There is no replacement for personal medical treatment and advice from your personal physician.

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Screening

 

The charity Jnetics (in partnership with Liverpool Women’s Hospital and Guy’s Hospital) is now offering a screening service for the Ashkenazi Jewish community. 

 

Screening involves a simple test that can identify if we 'carry' one of 9 severe genetic disorders (including Tay-Sachs) that disproportionately affect the Jewish community. 'Carriers' are not affected themselves but are at increased risk of passing on the condition to their children. Though rare, these 9 conditions are all devastating and typically occur when there is no family history.

 

If you are considering starting a family or having more children in the future, this service provides an opportunity to identify if you are a carrier and if so, helps you consider the different options available to reduce the risk of having an affected child.

 

For more info about this service; please click on the following link: JGD UK Community Screening.