Added by SCohen 6 July 2014
Please find below my notes when flying from the UK:
1) Oxygen must be pre arranged
Not all airlines carry oxegen for passengers, and the ones that do will only supply for one passenger per flight - So book early.
Airlines require specific flight insurance for FD patients. I have a seperate insurance with the FD condition named on the policy.
3) Fit to fly
Airlines require a fit to fly document written from your doctor within 7 days of your flight.
This list the condition as well as equipment and drugs you need to take with.
I take my perscriptions with in case I need any more while abroard.
5) Take EHIC card with.
The EHIC lets you get state healthcare at a reduced cost or sometimes for free. It will cover you for treatment that is needed to allow you to continue your stay until your planned return. It also covers you for treatment of pre-existing medical conditions and for routine maternity care, as long as you're not going abroad to give birth. ()
6) Seating and baggage
As we are now registered for flying with assistance with Monarch, we are allowed one suitcase for medical equipment which we do have to pay for taking on the aircraft. We also do not have to pay for allocated seats (Monarch airlines)
7) Flying assistance
Arrange for flying assistance when disembarking. Often the pressurised plane makes FD patients dizzy when they get off.
(We have wizzed through Gatwick airport in a golf cart provided by the airport previously)