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P.O. BOX 17679


NW4 1WS:

Email: Committee@fd-uk.org

UK registered charity number 285399

All information contained on the familialdysautonomia.co.uk website is intended for informational and educational purposes. The information is not intended nor suited to be a replacement or substitute for professional medical treatment or for professional medical advice relative to a specific medical question or condition.


We urge you to always seek the advice of your physician or medical professional with respect to your medical condition or questions. As a recipient of information from this website, you are not establishing a doctor/patient relationship with any physician. There is no replacement for personal medical treatment and advice from your personal physician.

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Please join us for the Maccabi Fun Run to raise funds for FD-UK


DATE: 23 June 2019

VENUE: Allianz Park, NW4 1RL

You can run or walk 10K, 5K or 1K.


This is an all inclusive event, wheelchair users, zimmer frames and buggies are welcome. 

There will be a charity fair and children’s activities, a family fun zone and a food court.

To join the FD-UK team and raise money for FD-UK, email: reply@FD-UK.org